A Milestone!
Well... it's official: no more solumedrol (IV prednisone steroid)!!!
What wonderful news. We anticipated that solumedrol would be discontinued and sure enough it was. Gracey is extremely happy! Of course everything went well at this past Friday's doctor visit. Physical and blood tests were great and the doctor continued to be impressed with Gracey's status.
Gracey will continue on a 6 week cycle of IVIG - so... the IV's are still a part of her life. But this is certainly a major accomplishment on the road to full remission. And it means 2 days of IV's instead of 3. She also continues daily doses of oral prednisone and folic acid with weekly injections of methotrexate.
I've got to tell this little story from the checkup. Gracey was feeling very good that day and wanted to show the doctors, nurses and therapists just how far she'd come since starting all these treatments. The first time Gracey was in that exam room she could barely walk, couldn't get up on her own and if laying down couldn't even raise her head. Well after the physical tests she decided to add some pushups. Not the easy kind - but proper form pushups... back and legs straight, go down till chest touches floor then up again. She did them extremely well for everyone without even breaking a sweat. All smiles!
"The Lord is my shepherd, I shall not want... ".
It's true you know!
More to come... ALWAYS
posted by Wes at
1/06/2008 05:46:00 PM
4 Comments:
My name is katie i am 23 and i had JDMS when i was little. I was the 90th case in the country to be diagnosed and the first in childrens memorial hospial in chicago IL back in 1991-92. I have been through it all, prednizone, 2 flare ups, pain, and many hospital stays. You have my support and if you would like to ask me our my mom any questions about the disease or how it will effect her future please feel free to email.
hummingbird2953@yahoo.com
Sincerely
Katie Houghton
Gracey,
This is Gracey. I was looking for my name for homework and found you! I spell it the same as you. I am 6 1/2 years old. I am glad that you are doing better.
Good to meet another Gracey. How old are you now?
Let's be pen pals.
Gracey Alice Brouillard
P.S. When is your birthday? I have brown hair like you.
Gracey
Hello, Miss Gracey Alice Brouillard! Thank you som much for the sweet email you sent to my little Gracey. She is 8 now and would love to talk to you. Just send me an email or phone number so I can make sure it's OK with your mommy or daddy and then you two girls can start visiting.
Good luck with your homework... I hope to hear from you soon! :)
Wes... Gracey's Dad
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