Update... finally (again) :)

Over the weekend Jan reminded me how I haven't posted anything here in quite a while. Once again, I'm sorry. So here's a little update.

Gracey's now 9 years old and doing beautifully. No IV's for over a year and her daily prednisone has steadily tapered - she should be off it alltogether within 6 months. Her immune is holding steady. No flares at all since things came under control which was around late 2007. And... her skin is perfect! Wow, it's such an amazing thing to look at her face and see her perfect little cheekers, all smooth and creamy. She's just beautiful!

Here's a shot of her from January 3, 2010.


Currently, Gracey has been a student in a local dance school for a couple years now. She's in the advanced group with several girls a few years older than her. Her strength is perfect! And flexibility is wonderful - she can almost do the complete splits. All of her checkups with the ped. rheum. are uneventful. Her CMOS scores are always maxed out, no signs of rash, papules, or even calcinosis - nothing - and for almost two years now.

We are so proud of her. Anyone reading this whose child is suffering from JDM please keep your hope and faith. Many times that's all that gets you through. There is always a light at the end of the tunnel!